welcome to twins with sma
Hello and welcome to the 'twins with SMA website.
Twins with sma - the story so far
Allow us to introduce you to two very beautiful and very special boys - Sam and Alex.
spinal muscular atrophy - the facts
Spinal Muscular Atrophy (SMA) is a neuromuscular condition causing weakness of the muscles.
up and coming fund raising events for  twins with sma
Family, friends and colleagues have been digging deep into the fund raising ideas box
quick links to twins with sma
Up and coming events
Family, friends and colleagues of Sarah and Ian, Sam and Alex’s parents, have been digging deep into the ideas box and some of the following events are proposed but as yet times and dates are to be confirmed.
Confirmed events
Proposed events

Confirmed events

20th April 2008 - Last year, Sam and Alex's dad Ian took part in the Derby 10k run. He has decided to take things a little easier this year so along with his brother Michael, and Michael's father-in-law Greg, Ian is running the slightly shorter Derby Fun Run on Sunday 20th April. If you would like to sponsor Ian, Michael or Greg, please contact us via this site.

One of Ian's colleagues, Maggie, makes handmade cards for various occasions. She has agreed to donate a percentage of each card sold to Twins with SMA. For information on Maggie's cards, please visit www.hmgcards.co.uk.


13th October 2007 - Sarah’s friend Charlotte Hunter and her sister Zoe Crosby are taking part in a parachute jump in October (exact date to be confirmed) to raise funds for the boys. If you would like to sponsor either Charlotte or Zoe please email sponsorme@twinswithsma.co.uk Two brave ladies!!!!!
Read the Derby Evening Telegraph story - click here
(The jump is scheduled for the 13th Oct, not the 23rd as reported in the Telegraph).

UPDATE: Due to low lying cloud, Charlotte and Zoe's parachute was cancelled. This has now been rescheduled for Saturday 3rd November. If you would like to sponsor either Charlotte or Zoe please contact sponsorme@twinswithsma.co.uk

Many thanks to the anonymous donor who has pledged £500 to these brave ladies.


13th/14th December - St Andrews Pre-School have kindly agreed to raise funds from their "Round the Crib" this year to twinswithsma. This event will be held on Thursday 13th and Friday 14th December. For further details, please contact ideas@twinswithsma.co.uk

Proposed events

There has been a lot of interest shown in the Charity Poker night which is to be held in the not too distant future. A brief appeal goes out to anyone that may be reading this and know of either a public house, social club or function room that holds regular poker nights and may be able to provide the adequate facilities, ie, tables, chips, dealers etc that will help put the event together to make it possible then it would be appreciated if you could contact us at ideas@twinswithsma.co.uk . As the focus is on generating funds we are trying to organise the event with minimal outgoings. Any suggestions would be welcomed.

Other proposed events:
A sponsored ‘Wear you PJ’s to school’ day
A fundraising Cheese and Wine party
A fundraising Coffee Morning

If you have any fundraising ideas or wish to organise an event for ‘Twins with SMA’ then please contact us at ideas@twinswithsma.co.uk

fund raising achievements so far for twins with sma
Please check this page regularly to find out what funds and awareness have been generated for Twins with SMA.
make a donation to twins with sma here
If you wish to make a donation to the Charitable Trust Fund, you can do so at any branch of the Derbyshire Building Society.
raising funds with every gift purchase for life
thank you to everyone helping twins with sma
Twins with SMA would like to thank all concerned for their help with both fund raising and other aspect of help provided.
contact twins with sma
If you are a friend or relative of someone who currently has Spinal Muscular Atrophy (SMA).
Twins with SMA is generously sponsored by:
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fabulous photo gifts - photo jigsaws and cd clocks
'Funds for Life' code: TWINSSMA - click here for more info

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SMA diary of events